A Comprehensive Guide To Tuberous Sclerosis Complex

Lifetime Medical Need

Being diagnosed with TSC means patients are monitored for the rest of their lives. It is not a disease that can be cured, which means patients must undergo regular exams and follow-up appointments to check for new growths, to continue to monitor existing growths and more significant health issues. The lifelong testing patients undergoare very similar to the testing they experience when they are first diagnosed. It is necessary for patients to attend each appointment on a regular basis as missing even one medical appointment could cause serious health problems if the TSC tumors continue to grow unmonitored.