Everything Patients Need To Know About Goldenhar Syndrome

Treatment And Management Options

Patients will receive individualized treatment for their condition based on the symptoms they exhibit, as well as the severity. Treatment will also vary based on the age of the patient and what they require during their growth. What is common, however, is to have a team of specialists managing each patient’s care.

The common issues doctors address when treating a patient’s Goldenhar syndrome include feeding and breathing issues. Feeding issues often require gastrostomy tube placement, supplemental nasogastric feedings, and even special bottles that are often meant for babies. Breathing issues include sleep apnea, which may require a breathing machine during sleep. Other common problems treated include hearing loss requiring the use of hearing aids, speech issues treated with speech therapy and evaluation, as well as surgeries to correct cleft lip and cleft palate, epibulbar tumors, and other symptoms requiring surgical intervention.

Goldenhar syndrome, though a rare disease, is clearly a tough one to deal with. Continue reading for a brief look into the outlook for patients with this congenital condition.